Towards the end of life people with advanced and comorbid disease often transit through multiple hospital admissions and re-admissions and interact with a variety of hospital departments and primary care services. This is often complex, demanding, and costly work for them. We want to improve patient experience by better understanding responses to this complexity and workload and develop tools to support more effective and appropriate navigation and utilisation of services.
Projects
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Using experiences of Heart Failure as a starting point, we will characterize and explain the dimensions of complexity towards the end of life and develop robust models of its impact on interactions with service
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Identify strategies to increase patient and caregiver capacity to manage complexity, improve co-ordination of care, and respect patient preferences
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Develop and implement simple and inexpensive tools that to help reduce experiences of complexity and to support more appropriate interactions with service providers
Watch Professor Carl May, theme lead for Complexity and End of Life Care, present the work of the CLAHRC in this area so far. This presentation was filmed at the launch of the CLAHRC Wessex on 12 March 2014.
